Bad news gets worse

Holding my mom's hand 

Today sucked.

Today the doctors sat us down and gave us the news my brothers and I had a sense was coming, but weren't prepared to really hear.

The stroke was catastrophic. They weren't able to save her brain. She is, for the most part, gone. About the only processing that's going on is that she's able to see us out of one eye, barely recognize that someone she knows is in the room, and squeeze our hand.

I'm reserving my real emotions. But, let's just say that this is about the suckiest thing I could imagine. Turns out she'll be lucky to live out the week. She signed a do not rescuscitate order and told all of her friends and family to let her go if she was going to be in such a state. Thankfully that took most of the hard decisions out of our hands. But it still was tough not overriding her wishes.

If there's some good that might come out of this, please sit down and communicate with your family about what you'd like to have happen in a similar situation. Do not leave these kinds of decisions to your next of kin.

Anyway, now I gotta stop crying, pull myself together, and fly relatives in from around the world. (Her sister is reading my blog, hello Tante!) There are many family and friends who can't make it here. We really appreciate your kind thoughts and prayers and we're reading these to my mom, she tugs on my hand when we're there, so the notes are comforting. If you need to talk with me, I'm on cell phone at 425-205-1921.

How do you say goodbye? One hand squeeze at a time.

Damn, this sucks.

  • http://leewilkins.com Lee Wilkins

    Robert

    Thinking of you and your family here in London, UK.

    Look after yourself

  • http://blogs.sun.com/jimgris Jim Grisanzio

    All the best to you and your family, Robert. You are not alone, believe me.

  • http://blogs.sun.com/jimgris Jim Grisanzio

    All the best to you and your family, Robert. You are not alone, believe me.

  • Joseph Rice

    Hey I am so sorry to hear such news, If I can be of any help please feel free to Contact me via E-mail, installshield_freak@hotmail.com I wish the best for all the Scoble family. Take Care, I will be praying for the best!

  • Joseph Rice

    Hey I am so sorry to hear such news, If I can be of any help please feel free to Contact me via E-mail, installshield_freak@hotmail.com I wish the best for all the Scoble family. Take Care, I will be praying for the best!

  • http://citabean.com/ Trisha Laich

    So many words of encouragement, support and hope. Your mother has blessed you in so many ways, a wonderful woman, no doubt. Remember her for who she is, and what shes done in your life.

    While I can’t offer what it’s like to lose a parent first hand, I know second hand from those close to me. Relish in her, the person who helped you become the man you are today, keep her close in your heart and she will be with you til the end.

    I’ll keep you in my prayers and offer my wishes of comfort to you.

  • http://citabean.com Trisha Laich

    So many words of encouragement, support and hope. Your mother has blessed you in so many ways, a wonderful woman, no doubt. Remember her for who she is, and what shes done in your life.

    While I can’t offer what it’s like to lose a parent first hand, I know second hand from those close to me. Relish in her, the person who helped you become the man you are today, keep her close in your heart and she will be with you til the end.

    I’ll keep you in my prayers and offer my wishes of comfort to you.

  • http://nelson.to/ Crille

    All the best to you and your family, Robert. You are not alone, My stepmother just hade a stoke and now she is paralysed and doctors cant give any positive answers.. Take care my thought is with you and your family. The pain you’re going trough is the love you have inside. God bless you.

  • http://nelson.to/ Crille

    All the best to you and your family, Robert. You are not alone, My stepmother just hade a stoke and now she is paralysed and doctors cant give any positive answers.. Take care my thought is with you and your family. The pain you’re going trough is the love you have inside. God bless you.

  • http://www.realmee.com/ronald-carpentier Ronald Carpentier

    Robert, your brave post made me cry. I wish you and your family all the best. My thoughts are with you from Amsterdam.

  • Ronald

    Robert, your brave post made me cry. I wish you and your family all the best. My thoughts are with you from Amsterdam.

  • http://news.bbc.co.uk/ Darren

    Keep your family close and you’ll get through this.

    Such sad news.

    Darren.

  • http://news.bbc.co.uk Darren

    Keep your family close and you’ll get through this.

    Such sad news.

    Darren.

  • skatterbrain

    It’s really cool that so many have come out to express their support for you during this. Count yourself lucky. It shows that your work has touched (and continues to touch) so many who appreciate it very much. Your mom has to be proud of you. No matter what happens, know that she has to be happy knowing you make a positive difference in this world.

  • skatterbrain

    It’s really cool that so many have come out to express their support for you during this. Count yourself lucky. It shows that your work has touched (and continues to touch) so many who appreciate it very much. Your mom has to be proud of you. No matter what happens, know that she has to be happy knowing you make a positive difference in this world.

  • http://truetalk.typepad.com/ Tom Guarriello

    I’m of the “you can’t get enough support at times like this” school, so, many thoughts and good wishes going out to you and your family at this difficult time.

  • http://truetalk.typepad.com Tom Guarriello

    I’m of the “you can’t get enough support at times like this” school, so, many thoughts and good wishes going out to you and your family at this difficult time.

  • http://www.smartpei.typepad.com/ Robert Paterson

    What a tribute to you Robert – this outpouring of support – bless you
    Rob P

  • http://www.smartpei.typepad.com Robert Paterson

    What a tribute to you Robert – this outpouring of support – bless you
    Rob P

  • http://playwithaguru.com/ Shariq

    bro..

    I know it’s a hard time..
    but i do believe everything happens for the good.
    sometiems we just don’t know how or why.
    but you know … God loves her more than any human
    ever can.

    talk really is cheap.
    but I do hope these words give you strength.
    it’ll all turn out good.
    n this too will pass.

    Just remember God loves her more than you do & everything that happens – happens for the best of us.

    God bless her n ur family!

    Shariq.

  • http://playwithaguru.com Shariq

    bro..

    I know it’s a hard time..
    but i do believe everything happens for the good.
    sometiems we just don’t know how or why.
    but you know … God loves her more than any human
    ever can.

    talk really is cheap.
    but I do hope these words give you strength.
    it’ll all turn out good.
    n this too will pass.

    Just remember God loves her more than you do & everything that happens – happens for the best of us.

    God bless her n ur family!

    Shariq.

  • http://lionzden.com/ Dieter

    Robert, Benny, and Alex,

    When in doubt God is in charge. Your mother was an inspiration to all she touched and she touched me deeply. She was my Mom’s best friend and a second mother to me growing up. The last time I saw her was at my brother’s wedding and full of life as always. We talked, laughed and hugged… What a wonderful time! She will always be with me. Here is a poem for you and your family in this trying time…

    God Heals

    Remember when you heard the words -
    and your mind went blank – you were in another world
    God heals
    Remember in your darkest hours -
    when all that surrounds you is pain and sorrow
    God heals
    Remember friends’ prayers – your family’s encouragement
    - glimmers of hope from everyday angels
    God heals
    Quiet…you can hear Him now -
    always there – yet never this close
    God heals
    It’s just another day -
    yet everything has changed – and you hear yourself say
    God heals
    Birds are singing -
    the sky is a beautiful blue – flowers are blooming…
    God heals
    Truths that you knew as a child -
    awakened again with new understanding
    God heals
    Remember when others can’t -
    that life is a gift – each day to treasure

    God Has Healed…

  • http://lionzden.com Dieter

    Robert, Benny, and Alex,

    When in doubt God is in charge. Your mother was an inspiration to all she touched and she touched me deeply. She was my Mom’s best friend and a second mother to me growing up. The last time I saw her was at my brother’s wedding and full of life as always. We talked, laughed and hugged… What a wonderful time! She will always be with me. Here is a poem for you and your family in this trying time…

    God Heals

    Remember when you heard the words -
    and your mind went blank – you were in another world
    God heals
    Remember in your darkest hours -
    when all that surrounds you is pain and sorrow
    God heals
    Remember friends’ prayers – your family’s encouragement
    - glimmers of hope from everyday angels
    God heals
    Quiet…you can hear Him now -
    always there – yet never this close
    God heals
    It’s just another day -
    yet everything has changed – and you hear yourself say
    God heals
    Birds are singing -
    the sky is a beautiful blue – flowers are blooming…
    God heals
    Truths that you knew as a child -
    awakened again with new understanding
    God heals
    Remember when others can’t -
    that life is a gift – each day to treasure

    God Has Healed…

  • http://www.poetbloggs.com/ pb.

    I cannot add anything deeper or stronger than what has already been said here. Only to add my support and thoughts to you and your family.

  • http://www.poetbloggs.com/ pb.

    I cannot add anything deeper or stronger than what has already been said here. Only to add my support and thoughts to you and your family.

  • http://atholas.wordpress.com/ Atholas

    Robert,

    I don’t know what to say to you in a situation like this other than to quietly pray for your mother and your family. It is a difficult time — a time that hundreds of people are enduring with you as is evident by the comments. Please be strong and send our love and concern to your mother.

    May God’s grace and peace be with your mother, you, and your family.

  • http://atholas.wordpress.com/ Atholas

    Robert,

    I don’t know what to say to you in a situation like this other than to quietly pray for your mother and your family. It is a difficult time — a time that hundreds of people are enduring with you as is evident by the comments. Please be strong and send our love and concern to your mother.

    May God’s grace and peace be with your mother, you, and your family.

  • http://www.wissel.net/ Stephan H. Wissel

    Robert,

    I can feel your pain experience a loved one slip away and sitting helpless seeing your mother fade away. It boldly reminds us of the impermanence of our lives and if your believes are strong carries the hope of a better existence thereafter.
    Peace to your and your mother’s soul!
    – Stephan

  • http://www.wissel.net/ Stephan H. Wissel

    Robert,

    I can feel your pain experience a loved one slip away and sitting helpless seeing your mother fade away. It boldly reminds us of the impermanence of our lives and if your believes are strong carries the hope of a better existence thereafter.
    Peace to your and your mother’s soul!
    – Stephan

  • http://jean.wordpress.com/ jean

    Robert,
    Sorry to hear.
    My prayers are with your mother, you and your family.
    God Bless
    Jean

  • http://jean.wordpress.com/ jean

    Robert,
    Sorry to hear.
    My prayers are with your mother, you and your family.
    God Bless
    Jean

  • http://davidericgolden.com/ Dave Golden

    Robert,

    My name is Dave Golden, and I’ve been reading your stuff for a while and introduced myself a few months back when I ran into you in the Seattle airport while you were traveling to San Jose, and mentioned I enjoyed reading your blog.

    My prayers go to you and your family. News like this is hard to hear.

    God bless, and remember good things come to good people, and you are in fact a good perosn.

  • http://davidericgolden.com Dave Golden

    Robert,

    My name is Dave Golden, and I’ve been reading your stuff for a while and introduced myself a few months back when I ran into you in the Seattle airport while you were traveling to San Jose, and mentioned I enjoyed reading your blog.

    My prayers go to you and your family. News like this is hard to hear.

    God bless, and remember good things come to good people, and you are in fact a good perosn.

  • http://jackyan.com Jack Yan

    Robert, I am deeply sorry to hear this. I remember getting some similar news when my mother was in a hospice—at age 54. If she is likely to pass, I would encourage you or member(s) of your family to be present at that moment. It was important for me to be there, as a way of saying goodbye.
       If you are a spiritual man, then I also believe it’s somehow good for the spirit to see the family there when she first departs from the body.

  • http://www.jackyan.com/blog Jack Yan

    Robert, I am deeply sorry to hear this. I remember getting some similar news when my mother was in a hospice—at age 54. If she is likely to pass, I would encourage you or member(s) of your family to be present at that moment. It was important for me to be there, as a way of saying goodbye.
       If you are a spiritual man, then I also believe it’s somehow good for the spirit to see the family there when she first departs from the body.

  • http://www.clipartheaven.com/ Lawrence

    Robert,

    I am sorry.

    My own mother has alzheimer’s disease and has been slipping away over the last couple of months.

    She is now having a very hard time speaking as she says ” the words will not come to me, sorry”.

    We also get just a knowing look and a hand squeeze, small assurance that she is still with us.

    Just remember that they will always live in your heart and soul and never ever truly leave you.

    All the best, to you and your family.
    Lawrence

  • http://www.clipartheaven.com Lawrence

    Robert,

    I am sorry.

    My own mother has alzheimer’s disease and has been slipping away over the last couple of months.

    She is now having a very hard time speaking as she says ” the words will not come to me, sorry”.

    We also get just a knowing look and a hand squeeze, small assurance that she is still with us.

    Just remember that they will always live in your heart and soul and never ever truly leave you.

    All the best, to you and your family.
    Lawrence

  • http://vanderwal.net/random/ vanderwal

    Robert, I deeply feel for you. Peace.

  • http://vanderwal.net/random/ vanderwal

    Robert, I deeply feel for you. Peace.

  • http://blogumentary.typepad.com/ Chuck Olsen

    Oof…. I’m so sorry Robert.
    Reading this makes me appreciate the time I have with my mom,
    and will have to bring this up with her on Mother’s Day.

    Take care.

  • http://blogumentary.typepad.com Chuck Olsen

    Oof…. I’m so sorry Robert.
    Reading this makes me appreciate the time I have with my mom,
    and will have to bring this up with her on Mother’s Day.

    Take care.

  • http://whiterose.wordpress.com/ whiterose

    My grandfather had a stroke a couple years ago. The doctors told us in the emergency room he was not going to live. Amazingly enough he did with partial paralassis to his left side that has gotten slowly better. I wish the best on you and the family.

  • http://whiterose.wordpress.com/ whiterose

    My grandfather had a stroke a couple years ago. The doctors told us in the emergency room he was not going to live. Amazingly enough he did with partial paralassis to his left side that has gotten slowly better. I wish the best on you and the family.

  • http://calnorthwestcorrespondent.libsyn.com/ Steve Raymond

    Robert -
    I’ve only had the privilege of meeting you once — at Gnomedex, last June ’05 — and all that I can think to say through my tears, tonight, as I read your blog, is that you have touched my life in a positive way, by your example.
    Steve Raymond

  • http://calnorthwestcorrespondent.libsyn.com/ Steve Raymond

    Robert -
    I’ve only had the privilege of meeting you once — at Gnomedex, last June ’05 — and all that I can think to say through my tears, tonight, as I read your blog, is that you have touched my life in a positive way, by your example.
    Steve Raymond

  • Rohan Maloney

    Robert I know that you have been getting alot of messages of support and prayer. The only message of support i can provide is take a day at a time and a sqeeze of the hand at a time. Hang in there and use your support network that you have aroung you atm.

    Regards
    Rohan

  • Rohan Maloney

    Robert I know that you have been getting alot of messages of support and prayer. The only message of support i can provide is take a day at a time and a sqeeze of the hand at a time. Hang in there and use your support network that you have aroung you atm.

    Regards
    Rohan

  • Heather Lloyd-Martin

    Robert,

    I am so, so sorry. I went through it with both parents – and it does suck beyond belief.

    My thoughts are with you.

    Take care of yourself,
    Heather

  • Heather Lloyd-Martin

    Robert,

    I am so, so sorry. I went through it with both parents – and it does suck beyond belief.

    My thoughts are with you.

    Take care of yourself,
    Heather

  • http://whatsnextblog.com whatsnext

    Robert: When my grandmother was in hospice, the nurses told me that people can hear til the last minute of their lives. Keep telling her you’re there and that you love her.

    And that it is ok for her to go.
    BL